Why is NCCDD funding this initiative?
- Critical issues related to healthcare decision-making arose during the COVID-19 pandemic for individuals with I/DD.
- Individuals with I/DD have historically been prevented from making many critical life decisions because their rights have been unnecessarily taken from them through guardianship when some type of other supported decision-making or independent decision-making was possible.
What are the major goals and timeline?
- Build on the work of NCCDD’s previous initiatives that focused on rethinking North Carolina’s guardianship system and promoting alternatives to full guardianship.
- Educate individuals with I/DD, family members, the legal community, and other key stakeholders about the new Guardianship Rights law titled “An Act to . . . promote the rights and independence of persons subject to the guardianship process.”
- Educate community members on how these rights may specifically offer more independence in healthcare decision-making in preparation for or in light of any future pandemic.
What activities will this initiative set out to do?
- Identify and assemble subject matter experts and advisory council members, including people with I/DD, family members, and professionals.
- Develop a Decision Tre for people in guardianship proceedings, particularly people with I/DD, family members, and professionals in the I/DD community.
- Complete the Guardianship Alternatives Step-By-Step Guide, incorporation the Decision Tree as well as previously produced materials on the Rethinking Guardianship website.
Who can I contact for questions?
NCCDD: Philip Woodward, Systems Change Manager, [email protected]
Additional Resources
Download a PDF about this initiative: After the Law: Guiding the I/DD Community to Supported Decision-Making
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